-
(单词翻译:双击或拖选)
World Hemophilia Day (WHD) started in 1989 as a way to raise awareness1 of the disorder2 and to bring attention to the needs of those who suffer from it. The reason it’s on April 17 is because that’s the birthday of the World Foundation for Hemophilia (WFH) founder3 Frank Schnabel. On WHD, organizations around the world organise4 a wide range of activities, events, and campaigns to help hemophiliacs. There is a different theme every year. Previous campaigns have included “Get vaccinated5! Prevent hepatitis A and B” and treating people with all bleeding disorders6. The WHF says treatment includes areas such as physiotherapy, information, training, diagnosis7, and research for a cure.
Hemophilia comes from the Greek haima "blood" and philia "to love". It is a group of genetic9 disorders that makes it difficult for the body to stop cuts bleeding. The cells that the body needs to clot10 blood are missing. Hemophilia is a hereditary11 disease and so it is passed down through generations. The gene8 that creates the disorder comes from the mother and is passed almost entirely12 to male babies. When hemophiliacs get a cut, the bleeding lasts much longer than in normal people. Even a small cut can bleed for weeks, and in some cases cuts may never heal. If cuts occur in the brain, they can be fatal. Hemophiliacs live a stressful life because they always have to be careful not to get even the smallest cut.
1 awareness | |
n.意识,觉悟,懂事,明智 | |
参考例句: |
|
|
2 disorder | |
n.紊乱,混乱;骚动,骚乱;疾病,失调 | |
参考例句: |
|
|
3 Founder | |
n.创始者,缔造者 | |
参考例句: |
|
|
4 organise | |
vt.组织,安排,筹办 | |
参考例句: |
|
|
5 vaccinated | |
[医]已接种的,种痘的,接种过疫菌的 | |
参考例句: |
|
|
6 disorders | |
n.混乱( disorder的名词复数 );凌乱;骚乱;(身心、机能)失调 | |
参考例句: |
|
|
7 diagnosis | |
n.诊断,诊断结果,调查分析,判断 | |
参考例句: |
|
|
8 gene | |
n.遗传因子,基因 | |
参考例句: |
|
|
9 genetic | |
adj.遗传的,遗传学的 | |
参考例句: |
|
|
10 clot | |
n.凝块;v.使凝成块 | |
参考例句: |
|
|
11 hereditary | |
adj.遗传的,遗传性的,可继承的,世袭的 | |
参考例句: |
|
|
12 entirely | |
ad.全部地,完整地;完全地,彻底地 | |
参考例句: |
|
|