科学美国人60秒 SSS 医生小说对待生死问题（在线收听）

Doc's YA Novel Treats Life and Death Issues

“My book is called Water in May, it’s about a 15-year-old Dominican-American living in Washington Heights named Mari Pujols. And she wants more than anything else to have a baby…and so she’s very excited when she finds out that she’s going to have a baby. And then the doctors tell her her baby has only half a heart.”

“我的书被称为五月的水，这是一个约15岁的多米尼加裔美国人，住在华盛顿高地，名叫Mari Pujols。而且，她最希望有一个孩子，所以当她发现自己要生孩子时，她非常兴奋。然后医生告诉她，她的宝宝只有一半的心脏。“

Ismée Williams. Dr. Williams is a pediatric cardiologist at Montefiore Hospital in the Bronx. And the author of the young adult novel Water in May.

Williams博士是布朗克斯区Montefiore医院的一名儿科心脏病专家。年轻成人小说《五月的水》的作者。

I met Williams May 19th at the first annual Bronx Book Festival at Fordham Plaza in New York City’s northernmost borough. As with so much so-called young-adult fiction, the novel deals with serious issues, including the medical issues surrounding such a heart defect.

我在纽约市最北端的福特汉姆广场，那里举行的首届年度布朗克斯图书节上，遇见了Williams，与所谓的年轻成人小说一样，这部小说涉及严重的问题，包括围绕这种心脏缺陷的医学问题。

“We do surgery for this type of heart problem, which is called hypoplastic left-heart syndrome.”

“我们为这种类型的心脏做手术，这被称为左心发育不全综合征。”

Forty years ago, 95 percent of infants with the condition died within a month. Now, most of these kids will make it to adulthood—but will also need frequent medical monitoring and care.

40年前，有95%的婴儿在一个月内死亡。现在，这些孩子中的大多数都会成年，但也需要频繁的医疗监护和护理。

Anyone buying the book will support a worthwhile cause, too.

购买这本书的人，也会支持一个有价值的事业。

“Forty-thousand kids a year are born with heart defects…I’ve partnered with a group called Colin’s Kids, which raises money for families who are affected by congenital heart disease and are in financial need, and also raises money for research. So five-percent of book sales go directly to them. Because part of my goal for writing the book is also to raise awareness about the number one birth defect, the most common birth defect.”

“一年有四万名孩子出生时，患有心脏病。我与一个名为Colin's Kids的小组合作，这个小组为那些受先天性心脏病和经济需要影响的家庭提供资金，并且还为研究筹集资金。因此，5%的图书销售直接发给他们。因为我写这本书的部分目标，也是为了提高人们对高比重的先天缺陷疾病的认识，这是最常见的出生缺陷。”